{"id":10141,"date":"2026-09-06T18:22:28","date_gmt":"2026-09-06T18:22:28","guid":{"rendered":"https:\/\/www.jeune-independant.net\/en\/?p=10141"},"modified":"2026-09-06T20:16:30","modified_gmt":"2026-09-06T20:16:30","slug":"autism-care-strategy-the-challenges-of-inclusion-and-autonomy","status":"publish","type":"post","link":"https:\/\/www.jeune-independant.net\/en\/2026\/09\/06\/autism-care-strategy-the-challenges-of-inclusion-and-autonomy\/","title":{"rendered":"Autism Care Strategy: The Challenges of Inclusion and Autonomy"},"content":{"rendered":"

While public authorities multiply efforts to structure the national autism care framework, notably with the announcement of a national reference center and the expansion of early screening, civil society actors are calling for a thorough revision of the adopted strategy. For the president of the Elias Foundation, Farah Acid, these measures nevertheless remain insufficient without a structural overhaul of care delivery.<\/strong><\/p>\n

“The question is not merely knowing what the State will do for autistic individuals, but with whom it will build this policy,” insists Farah Acid. Grounded in her field experience, she articulates this vision around three strategic pillars: establishing participatory governance that integrates parents and practitioners, eliminating jurisdictional overlaps between the health, education, and solidarity sectors, and initiating a transition from the institutional model toward supported autonomy.<\/p>\n

The first priority concerns governance. Public policies cannot be crafted solely at the central level without involving those who live with autism on a daily basis.<\/p>\n

She thus advocates for the effective participation of families, parents with direct experience of autism, and frontline professionals. Teachers, school psychologists, psycho-pedagogical center workers, and other stakeholders must be able to contribute to designing these frameworks.<\/p>\n

The second priority focuses on dividing responsibilities among various sectors. For Farah Acid, the mandates of health, education, and social solidarity must be better defined while strengthening their coordination.<\/p>\n

The healthcare sector must intervene in clinical care and assessment, the solidarity sector in social support and family assistance, while national education must guarantee the schooling of autistic children and adapt schools to their profiles.<\/p>\n

The president of the Elias Foundation specifically warns against the risk of developing parallel educational solutions. “We cannot resolve the difficulties of inclusive schooling by creating a side-by-side educational system outside of national education,” she contends.<\/p>\n

In her view, specialized facilities should not serve as a systematic response to the shortcomings of mainstream schools. On the contrary, the general school system must evolve to become better equipped to accommodate autistic students.<\/p>\n

The third pillar involves the care model itself. Farah Acid calls for gradually moving away from a approach centered on specialized institutions to prioritize “supported independent living.”<\/p>\n

The goal is to enable autistic individuals to live within society while receiving necessary assistance. This approach must be conceived during childhood and continue into adulthood through schooling, vocational training, employment, housing, and social support.<\/p>\n

This issue becomes particularly crucial as parents age and can no longer provide care for their children unassisted. For Farah Acid, autonomy must therefore be anticipated and integrated into public policies, rather than treated as an afterthought.<\/p>\n

Through these three priorities, the Elias Foundation advocates for a paradigm shift, moving from an institutionally based framework toward a person-centered approach focused on individual environments and social participation. The challenge now lies in ensuring that the relevant sectors work complementarily while placing families and the future of autistic individuals at the core of decision-making.<\/p>\n","protected":false},"excerpt":{"rendered":"

While public authorities multiply efforts to structure the national autism care framework, notably with the announcement of a national reference center and the expansion of early screening, civil society actors are calling for a thorough revision of the adopted strategy. For the president of the Elias Foundation, Farah Acid, these measures nevertheless remain insufficient without […]<\/p>\n","protected":false},"author":2,"featured_media":10130,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[12],"tags":[1725,19],"class_list":["post-10141","post","type-post","status-publish","format-standard","has-post-thumbnail","category-domestic","tag-autism-spectrum-disorder","tag-top-news"],"byline":"Lynda Louifi.","_links":{"self":[{"href":"https:\/\/www.jeune-independant.net\/en\/wp-json\/wp\/v2\/posts\/10141","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.jeune-independant.net\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.jeune-independant.net\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.jeune-independant.net\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.jeune-independant.net\/en\/wp-json\/wp\/v2\/comments?post=10141"}],"version-history":[{"count":1,"href":"https:\/\/www.jeune-independant.net\/en\/wp-json\/wp\/v2\/posts\/10141\/revisions"}],"predecessor-version":[{"id":10142,"href":"https:\/\/www.jeune-independant.net\/en\/wp-json\/wp\/v2\/posts\/10141\/revisions\/10142"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.jeune-independant.net\/en\/wp-json\/wp\/v2\/media\/10130"}],"wp:attachment":[{"href":"https:\/\/www.jeune-independant.net\/en\/wp-json\/wp\/v2\/media?parent=10141"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.jeune-independant.net\/en\/wp-json\/wp\/v2\/categories?post=10141"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.jeune-independant.net\/en\/wp-json\/wp\/v2\/tags?post=10141"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}